People with metastatic breast cancer are demanding to be seen,
counted and included in breast cancer research.
BY SUE ROCHMAN
On Sunday, April 12, 2015, at 10: 45 a.m., 108 women and men lay down shoulder-to-shoulder on the floor of a hallway in the Loews
Philadelphia Hotel. They were participating
in a “die-in” to raise awareness of metastatic
breast cancer. Many had been up until 3 a.m.
spreading the word about the action among
fellow attendees at Living Beyond Breast
Cancer’s (LBBC) ninth annual metastatic
breast cancer conference.
As they blocked the hall, words written by
Beth Caldwell, a woman living with metastatic breast cancer, were read aloud: “Dearly
beloved, we are gathered here to say our
goodbyes to the 108 Americans who will die of
metastatic breast cancer today, and every day,
because there is no cure for our disease. They
are our friends, our mothers, our daughters,
our sisters, and they deserve better. They
deserve a cure, and we honor their memory by
demanding it, not someday, but now. And now,